For the last three years I have been feeling led to start a foundation to aid in the fight for better adult care of Congenital Heart Survivors; I say ‘led’ because I felt that God was asking me to do it… and my answer was always ‘No, I can’t’. I am not sure if youContinue reading “Joshua’s Hope”
Tag Archives: Sick Kids Hospital
Super Josh visits Cardiac Clinic
Josh hands over his health card and gets himself registered… hes growing up. on Wednesday we had our cardiology appointment, this update is past due and I apologize for that for those of you who have been asking. The main reason (for those of you not caught up) for this last visit was that JoshContinue reading “Super Josh visits Cardiac Clinic”
sabath summer
In Sanibel enjoying a post dinner walk on the beach This past weekend we marked a significant day in our little family. We hit the one year anniversary for Josh’s last surgery. That may seem like less than a big deal, but we were advised that if we chose the replacement surgery over the paleativeContinue reading “sabath summer”
Not just a dream
The last few days I haven’t been able to post… sadly Ive had a sick kid on my hands (Kaleb not Josh) and he’s needing extra TLC. I did however have some time earlier in the week to begin this new project for the CCHA. There will be more to come so keep your eyesContinue reading “Not just a dream”
Direction
Today is the big day! After months of waiting, Tim and I are finally getting the holiday we couldn’t have this summer! We fly to NYC today where we will spend four days, and then we get on board a cruise headed to Bahamas (with a stop in Orlando for a theme park – notContinue reading “Direction”
Ever in flux. Ever blessed.
Getting used to life with a sick kid is knowing that you just can’t make solid plans, this we have learned a long the way and will explain the later part of this post. The other things we have learned in regards to the hospital stays are that it’s not cheap. There is the food,Continue reading “Ever in flux. Ever blessed.”
technical not emotional
I have have been getting a lot of questions about Joshua’s particular diagnosis. So I thought I would post today a little bit about his CHD. As I mentioned in yesterday’s post, the term CHD, or Congenital Heart Defect is a blanket term for a great number of diagnosis’ and I prefer to keep itContinue reading “technical not emotional”
Through the Lens of Motherhood 