I read a blog post today from a mom who lost her son when he was just a year or so old to a congenital heart defect; she was talking about how she had been going through posts online and saw the a video about being a ‘heart mom’ and how that made her cryContinue reading “an open letter to a heart mom”
Tag Archives: open heart surgery
technical not emotional
I have have been getting a lot of questions about Joshua’s particular diagnosis. So I thought I would post today a little bit about his CHD. As I mentioned in yesterday’s post, the term CHD, or Congenital Heart Defect is a blanket term for a great number of diagnosis’ and I prefer to keep itContinue reading “technical not emotional”
The date
The second (or is this the third) stage of waiting is over… we have a date for surgery. July 31st, unless we get a cancellation before that. Now, the final stage of waiting can begin, though I think this is the worst part of it all. The knowing, the dark cloud on the horizon thatContinue reading “The date”
The journey home again
The emotional roller coaster of the last few days has been intense but with relief I am finally able to Blog and let you know that we are home. Josh went in on Thursday for his surgery, it took 6 hours. The managed to fix the T-valve by adding some human tissue, and they onceContinue reading “The journey home again”
Will it be enough?
Today was my final day of ignoring the week ahead, we allowed ourselves today to forget and just enjoy time as a family. We headed to the Airshow and the CNE and ended up at the roller coaster at Ontario Place. The kids were exhausted by the time we got home but still had enoughContinue reading “Will it be enough?”
a morning ramble…
There are so many things running through my head right now, practical issues like babysitting, school, packing, figuring out food for the hospital, so many stupid things that I am sure in the end will work out. I worry about Kaleb, he’s going to Grandma and Grandpa’s so he’ll have a good time, but willContinue reading “a morning ramble…”
The Paradox
We have all heard the saying that when it rains it pours, and for a while now it’s been raining. For the last two weeks every single member of our family has had a hospital visit, though our kids are certainly the ones to take the brunt of the suffering. The storm picked up speedContinue reading “The Paradox”
Just beyond the sunrise
So many people have been praying so hard for Josh, so many expectations have been placed on today’s ECHO, so many hopes rested on today’s test results that I have a heavy heart when I sit down to update you all. The ECHO did not go as planned, the right side of Joshua’s heart isContinue reading “Just beyond the sunrise”
How long?
I am sitting here trying to get a grip on things… trying to find some measure of comfort in the small things in life, or at the very least trying to muster some courage, some strength but for the moment I feel empty, numb and afraid. Today we had an unexpected ECHO appointment for Josh,Continue reading “How long?”
The aftermath
Bringing Josh home was both a surprise and a joy. We were so happy, he was so happy, I don’t think any of us had anticipated how quickly they would let us go home. Our first night was to be spent at a hotel near to the hospital, we prepared to have a good night.Continue reading “The aftermath”
Through the Lens of Motherhood 