When we arrived home from church today there were four large canvas’s at our door. Each one carrying a message of prayers and best wishes, all from kids we don’t know from a church that I have never attended. St. Cuthbert’s in Leaside has a family history for me though, that they couldn’t possibly know,Continue reading “While we were out”
Tag Archives: Joshua
So much in one small post
Today, across the nation, or more appropriately I should say the across the globe there are thousands of people saying at least one prayer for Joshua as we head into his catheterizaton and planning for surgery. This never ceases to blow my mind! I am still so touched and awed by the many who haveContinue reading “So much in one small post”
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A week in the Haughton House
The past week has been what I refer to as a ‘gong show’ only at least on the gong show when it get’s to be too much, too awful or just stupid you can hit a gong and stop the craziness… this week no such gong could be found. The last while Tim and IContinue reading “A week in the Haughton House”
rainbow in the mailbox
When the rain stops, and the sun comes out, that’s when you find your rainbow. This week was tough, for a few reasons but today the sun came out, and in my mailbox I found a beautiful rainbow. It had every colour of joy in it, and I won’t lie. I cried. What was it?Continue reading “rainbow in the mailbox”
30 Hours
This post is a call out to all of Josh’s prayer warriors… We need you in the next 30hours. Let me explain. As most of you know, In August we were denied an assessment with Bloorview for speech, on the grounds that he didn’t quite fit into their category for care (he didn’t have CPContinue reading “30 Hours”
ECHO fun?
ECHO days have never ever been fun… I can’t remember ever having one that went well, or smoothly for that matter…. Today that changed! Josh’s heart has made very little decline since his last ECHO six months ago, and his quality of life is still good… so we have another 6 month reprieve! I can’tContinue reading “ECHO fun?”
Scared, all gone
Last year, or thereabouts, we were told that Josh would most likely be diagnosed with an autistic spectrum disorder, we fought the diagnosis because our guts told us that this wasn’t right, no one tried to rule out his history, instead they took everything we said and tried to make it fit the diagnosis. IContinue reading “Scared, all gone”
Unexpected
I am sitting in a waiting room, in the old halls of Sick Kids. Josh is down the hall being tested for all sorts of things, all of them falling under the heading ‘neuropsychology’. His psychologist spent the morning taking with me, and for the first time i have been given a reason for Joshua’sContinue reading “Unexpected”
Lament
Sometimes waiting with patience is like bashing your head against a wall… and sometimes hope gets lost in the mundane rituals of life. I have been watching Kaleb develop in giant leaps these days, it’s been amazing and heart breaking at the same time because it won’t be long before Kaleb is speaking more, understandingContinue reading “Lament”