ECHO – Through the Lens of Motherhood

Mountains on the horizon.

Last year when Josh was being wheeled into the OR a song started repeating in my head, actually it wasn’t a song so much as a line from a song, one that got stuck on repeat in my brain throughout the entire time he was in the OR and in the days that followed. IContinue reading “Mountains on the horizon.”

Please pray

As you have heard the last few days Josh has been struggling, the main issue of course is that he’s tired but there are symptoms that are worrying us. The last month has been particularly difficult for him and though I have tried to put the worry aside it finally came to a head onContinue reading “Please pray”

A week in the Haughton House

The past week has been what I refer to as a ‘gong show’ only at least on the gong show when it get’s to be too much, too awful or just stupid you can hit a gong and stop the craziness… this week no such gong could be found. The last while Tim and IContinue reading “A week in the Haughton House”

ECHO fun?

ECHO days have never ever been fun… I can’t remember ever having one that went well, or smoothly for that matter…. Today that changed! Josh’s heart has made very little decline since his last ECHO six months ago, and his quality of life is still good… so we have another 6 month reprieve! I can’tContinue reading “ECHO fun?”

ECHO day

The word ECHO is now an every day part of our vocabulary. I hate the word, I hate the fear that it instills and I hate the days that mark ECHO on my calendar. Today was one such day. All the way to Sick Kids this morning I talked to Josh about the upcoming ECHO,Continue reading “ECHO day”

One more day…

We had another ECHO today for Joshua, he’s such a trooper! In some ways it’s so great that he is so good but it’s sad too sometimes to see how he knows what they are going to do before they do it… he sticks out his finger for the SAT’S monitor, holds his arm upContinue reading “One more day…”

Waiting for patience impatiently

I have been alive a loooong time… (no I won’t say exactly what a loooong time is) and in all that time I have been impatient. I used to say ‘God made me this way, surly he likes me the way he made me, he doesn’t make mistakes’, but alas I think that the realityContinue reading “Waiting for patience impatiently”