Tag Archives: #CongenitalHeartDefects

a beautiful melody

We are on the flip side. That is a beautiful place to be. No more waiting, no more wondering, no more anxiety… just peaceful restoration. It has been a beautiful journey really, in an odd way. The love we as a family felt through out this process has been unprecedented. My email and texts notificationsContinue reading “a beautiful melody”

Joshua’s Hope

For the last three years I have been feeling led to start a foundation to aid in the fight for better adult care of Congenital Heart Survivors; I say ‘led’ because I felt that God was asking me to do it… and my answer was always ‘No, I can’t’. I am not sure if youContinue reading “Joshua’s Hope”

Mountains on the horizon.

Last year when Josh was being wheeled into the OR a song started repeating in my head, actually it wasn’t a song so much as a line from a song, one that got stuck on repeat in my brain throughout the entire time he was in the OR and in the days that followed. IContinue reading “Mountains on the horizon.”

Early Detection matters

  Josh a few days old, he had so much fluid on board that his tummy actually ripped because the skin stretched so much. To this day he bares the scar. He was 4’11 lbs, when he was born, he got a lot heavier and then and 6 weeks later when we brought him homeContinue reading “Early Detection matters”

a look back…

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