an open letter to a heart mom

I read a blog post today from a  mom who lost her son when he was just a year or so old to a congenital heart defect; she was talking about how she had been going through posts online and saw the a video about being a ‘heart mom’ and how that made her cryContinue reading “an open letter to a heart mom”

one stupid clot

This blog has typically been a place for me to share my thoughts about Congenital Heart Defects and how it affects our family, our faith and our journey through life together. It’s also been a therapy tool for me, to write out my thoughts and fears into the great abyss that is ‘the word wideContinue reading “one stupid clot”

One event down… next one in the planning stages!

Yesterday we hosted an event at Nelson Mandela Park public school to raise awareness for Congenital Heart Defects (CHD) and to help raise money for the Cardiac Kids. It was AWESOME! Carlton and David Clarkson of the Toronto Maple Leafs showed up to say thank you on behalf of Cardiac Kids. Josh played the roleContinue reading “One event down… next one in the planning stages!”

Early Detection matters

  Josh a few days old, he had so much fluid on board that his tummy actually ripped because the skin stretched so much. To this day he bares the scar. He was 4’11 lbs, when he was born, he got a lot heavier and then and 6 weeks later when we brought him homeContinue reading “Early Detection matters”

a look back…

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