ECHO day

ECHO day… I have talked about it in the past; all the anxst that goes into that one day 2 times a year. The weeks of dreading it, the constant eye out for changes to report, the worry that the doctor will say something you didn’t want to hear. Quite frankly it hasn’t been veryContinue reading “ECHO day”

Hope

I have told you about this exciting new phase in my life, the stage in the game when I put my words into actions and begin to make some change. Before Christmas I announced the birth of Joshua’s Hope, a charitable organization that will focus on the future of Cardiac Care, for kids and adultsContinue reading “Hope”

Joshua’s Hope

For the last three years I have been feeling led to start a foundation to aid in the fight for better adult care of Congenital Heart Survivors; I say ‘led’ because I felt that God was asking me to do it… and my answer was always ‘No, I can’t’. I am not sure if youContinue reading “Joshua’s Hope”

Super Josh visits Cardiac Clinic

Josh hands over his health card and gets himself registered… hes growing up. on Wednesday we had our cardiology appointment, this update is past due and I apologize for that for those of you who have been asking. The main reason (for those of you not caught up) for this last visit was that JoshContinue reading “Super Josh visits Cardiac Clinic”

My brain may just implode

 For a long time I went about doing things in a disordered and chaotic way, I am not an organized soul… in fact once upon a time I took great pride in my disordered existence. Planning?? What’s that?? I remember when Tim and I started dating and he took me out for dinner and heContinue reading “My brain may just implode”

Daily news

I wrote yesterday about the stroke team meeting to discuss Josh’s case yesterday… I’ve been sick with this nasty cold and we had Beavers last night so it took all my energy just to accomplish the little things like dinner and Beavers and getting them into bed; I all but forgot that they were toContinue reading “Daily news”

Tribute to Kaper

This weekend we had a fantastic day celebrating our little guy Kaleb at the Labatt Family Heart centre’s siblings conference. the day focused on the siblings of our heart kids and gave them a chance (for once) to be the centre of attention and the focus of our appreciation. It isn’t often that we goContinue reading “Tribute to Kaper”

Mountains on the horizon.

Last year when Josh was being wheeled into the OR a song started repeating in my head, actually it wasn’t a song so much as a line from a song, one that got stuck on repeat in my brain throughout the entire time he was in the OR and in the days that followed. IContinue reading “Mountains on the horizon.”

sabath summer

In Sanibel enjoying a post dinner walk on the beach This past weekend we marked a significant day in our little family. We hit the one year anniversary for Josh’s last surgery. That may seem like less than a big deal, but we were advised that if we chose the replacement surgery over the paleativeContinue reading “sabath summer”

All for a smile

There is nothing more special than seeing your kids being treated like they are special. It’s that simple. Want to win my heart? Win my kids hearts. Want to make me happy? Treat my kids well. Want to say thank you? Say it by being nice to them. In my strive to make people awareContinue reading “All for a smile”