#CHD #decisions #redforjosh #pray – Through the Lens of Motherhood

The date

The second (or is this the third) stage of waiting is over… we have a date for surgery. July 31st, unless we get a cancellation before that. Now, the final stage of waiting can begin, though I think this is the worst part of it all. The knowing, the dark cloud on the horizon thatContinue reading “The date”

Hail Mary Pass

We are going with the hail Mary pass. Meaning, after a long and basically sleepless night Tim and I feel that we can’t yet decide to do the fontan procedure; not when there is still hope that the replacements of those two valves ‘could’ give him more time, he may not reject them, he mayContinue reading “Hail Mary Pass”